by Malcolm Mackay Vasculitis shares many characteristics with other serious illnesses but differs in significant ways. As I know from my own experience when you have been told that you have [...]
Vasculitis doctors and scientists are pushing the boundaries of knowledge in order to address the many challenges which people with vasculitis continue to experience. In recent times there has [...]
The Black and Red Ball is back! Help us raise funds and awareness of vasculitis by joining us at a fabulous evening of entertainment on the 17th September 2022 at the Radisson Blu Hotel, Glasgow. [...]
Annie Peacock is the PhD student who will be contributing to the discovery of next generation drug targets for GCA. This is a 3 year project which has been funded by LCTF. Congratulations to [...]
28th February marked Rare Disease Day. East Ayrshire Council lit up the Viaducts in Kilmarnock town centre in recognition of Rare Disease Day and in memory of Lauren who died from vasculitis at [...]
We are looking for feedback for the Clinical Care working group of the SSVN (Scottish Systemic Vasculitis Network) where The Lauren Currie Twilight Foundation is a patient representitive. [...]
Sleep Well During The Covid-19 Pandemic For the first time for many people they are experiencing unsettling vivid dreams, nightmares, and often wakening during the night with feelings of [...]
It’s normal to feel worried and anxious when financial uncertainty is looming or the prospect of unemployment is pending. Debt and financial problems can all cause significant emotional [...]
Now more than ever it’s essential to look after your wellbeing. Being diagnosed with a life-changing condition alongside the stress of living through a pandemic can easily exacerbate your [...]
We recently created these patient support materials for doctors to distribute to newly diagnosed vasculitis patients in hospitals. Our Steps to Wellbeing highlights all the support services [...]
The Vasculitis wellbeing course is being held at Rowallan Castle, near Kilmarnock from 16th-17th May, 2020. The course includes: Talk Therapy Counselling Reflexology Sleep Management Nutrition [...]
The wellbeing course for Vasculitis is designed with the vasculitis patient in mind. In the last 8 years, we have worked closely supporting patients throughout the UK by offering support services [...]
