Light Up for Rare Disease Day

28th February marked Rare Disease Day. Easy Ayrshire Council lit up the Viaducts in Kilmarnock town centre in recognition of Rare Disease Day and in memory of Lauren who died from vasculitis at [...]

Questionnaire for Scottish Patients

We are looking for feedback for the Clinical Care working group of the SSVN (Scottish Systemic Vasculitis Network) where The Lauren Currie Twilight Foundation is a patient representitive. [...]

Goodbye 2020!

Goodbye 2020. Will we be sad to see you go? Not one little bit! In fact, we might adopt the custom of opening the door at midnight to usher out the past year…just to make sure it actually goes! [...]

Sleep Well During Shielding

Sleep Well During The Covid-19 Pandemic   For the first time for many people they are experiencing unsettling vivid dreams, nightmares, and often wakening during the night with feelings of [...]

Financial Uncertainty

It’s normal to feel worried and anxious when financial uncertainty is looming or the prospect of unemployment is pending. Debt and financial problems can all cause significant emotional [...]

World Wellbeing Week and Vasculitis

Now more than ever it’s essential to look after your wellbeing. Being diagnosed with a life-changing condition alongside the stress of living through a pandemic can easily exacerbate your [...]

Sleep Disorders in People with Vasculitis

A sleep study is being carried out by The Dept of Sleep Medicine and the Vasculitis Team at the Royal Infirmary of Edinburgh to find out how common sleep disturbances and sleep disorders are in [...]

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