A Patient Journey
Andy Mackie and Alicon Ferguson recently delivered a patient talk at The Lauren Currie Twilight Foundation Edinburgh Vasculitis Support Group on 23rd November. Andy and Alicon are both patients at the Edinburgh Vasculitis clinic under the care of Dr Kluth and Dr Neeraj Dhaun and are keen to talk about their journey to help other patients.
Andy Mackie was diagnosed with Microscopic Polyangiitis and has given a talk on his journey with the disease. Andy talks about what to expect from MPA, symptoms, treatments and how the disease has not held him from pursuing other challenges in life. Alicon Ferguson was diagnosed with Granulomatosis with Polyangiitis (formerly Wegeners Granulomatosis) and Alicon talks about her 30 year journey with GPA and the difficulty of being diagnosed.
You can watch both presentations on our Vasculitis TV at the Patient Support Centre by selecting case study 4 & 5. If you are not already a member then you can register at https://www.thelaurencurrietwilightfoundation.org/component/users/?view=registration