Light Up for Rare Disease Day

28th February marked Rare Disease Day. East Ayrshire Council lit up the Viaducts in Kilmarnock town centre in recognition of Rare Disease Day and in memory of Lauren who died from vasculitis at [...]

We are looking for feedback for the Clinical Care working group of the SSVN (Scottish Systemic Vasculitis Network) where The Lauren Currie Twilight Foundation is a patient representitive. [...]

Goodbye 2020. Will we be sad to see you go? Not one little bit! In fact, we might adopt the custom of opening the door at midnight to usher out the past year…just to make sure it actually goes! [...]

          Cat Walker Art from Aberdeenshire painted this beautiful winter scene for LCTF’s Christmas card selection. It’s proven to be one of the most popular designs and a repeat [...]

Sleep Well During The Covid-19 Pandemic   For the first time for many people they are experiencing unsettling vivid dreams, nightmares, and often wakening during the night with feelings of [...]

It’s normal to feel worried and anxious when financial uncertainty is looming or the prospect of unemployment is pending. Debt and financial problems can all cause significant emotional [...]

Now more than ever it’s essential to look after your wellbeing. Being diagnosed with a life-changing condition alongside the stress of living through a pandemic can easily exacerbate your [...]

A sleep study is being carried out by The Dept of Sleep Medicine and the Vasculitis Team at the Royal Infirmary of Edinburgh to find out how common sleep disturbances and sleep disorders are in [...]

We recently created these patient support materials for doctors to distribute to newly diagnosed vasculitis patients in hospitals. Our Steps to Wellbeing highlights all the support services [...]

The Vasculitis wellbeing course is being held at Rowallan Castle, near Kilmarnock from 16th-17th May, 2020. The course includes: Talk Therapy Counselling Reflexology Sleep Management Nutrition [...]