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Digby Brown raise £6000 for The Lauren Currie Twilight Foundation

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http://www.dailyrecord.co.uk/news/local-news/kind-hearted-solicitors-raise-whopping-9745947

 

 

Staff at the Ayr branch of solicitors Digby Brown have raised a staggering £6000 for The Lauren Currie Twilight Foundation, a local vasculitis charity based in Kilmarnock.

Digby Brown nominated LCTF as their local charity of the year and throughout 2016 raised funds by organising a regular dress-down Friday, hamper prize draws, and bake sales. The Digby Brown team also ran the Vasculitis Awareness 5k in June at Dean Castle Country Park.

The Lauren Currie Twilight Foundation was set up in 2010 by Grant and Adrienne Currie in memory of their daughter Lauren who died of Wegener’s Granulomatosis, a form of vasculitis., they fund and run support groups throughout Scotland as well as an online support forum. The charity also fund The Twilight Cabin, a respite cabin near Oban, for vasculitis patients and their families.  The charity organises events around Scotland raising awareness and funds for support services and medical research. Their marquee event is The Black & Red Ball. Held in September each year to mark Lauren’s birthday, this fundraiser has hosted the likes of Shayne Ward, Five and Nicholas McDonald in previous years.

“We are delighted to receive this generous donation from Digby Brown. Having businesses fundraise for smaller, local charities such as ourselves is hugely important. Thanks to everyone involved at Digby Brown, Ayr for their hard work and dedication to our charity – this donation will go a long way.

Our aim is that every person diagnosed with vasculitis in Scotland and the UK will be aware of, and can access the services we provide along with their carers, friends and family” –   Grant Currie, Co-founder and Trustee.

2017 is shaping up to be an exciting year for The Lauren Currie Twilight Foundation. As well as being a charity partner for The Nicest Job in Britain 2017, they will be hosting their first wellbeing and self-management residential course. This event will take place in early May and is open to vasculitis patients and carers.

For more information on the support services provided by The Lauren Currie Twilight Foundation visit www.vasculits-scotland.org and www.thelaurencurrietwilightfoundation.org

 

Notes –

Vasculitis it is a rare, auto-immune condition that can be very dangerous if left undiagnosed. It can be difficult to identify. There are about 15 ‘variants’ of the condition, each affecting different parts of the body and different groups of people. Symptoms can vary, and can present themselves over an extended period of time. An early diagnosis is an important factor in the effectiveness of medical care.

Funding awards for vasculitis support groups in Scotland.

 

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It has been an exciting start to 2017 for The Lauren Currie Twilight Foundation. We are delighted to announce that we have received funding awards from LloydsTSB Foundation for Scotland and The Roberston Trust. Both awards will contribute to running our support groups around Scotland this year.

As you may know, LCTF run quarterly support groups in Aberdeen, Edinburgh, and Glasgow as part of the Vasculitis Scotland support network. We also had our first group meeting in Inverness in late 2016 and are planning a group in Dundee later this year. There is also funding available for a series of ‘Away days’ support groups throughout the year.

These awards are gratefully received and will go a long way to continue the support services we provide for people affected by vasculitis in Scotland and the UK.

If you have attended any of our support groups and have any suggestions for new themes or speakers, or how we could improve them, please get in touch.

For more information on our support groups in 2017, visit www.vasculitis-scotland.org

 

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2017 Vasculitis Patient Support Groups

The Lauren Currie Twilight Foundation is due to start our 2017 Patient Support Groups. The groups are a great source of guidance, wellbeing support and patient networking. They are informal and all our groups are free to attend as they are fully funded by our charity. Buffet lunch is served after the group presentations are complete.

Join us at:

Radisson Blu Hotel (Glasgow) – Sat 14th Jan 2017 at 1pm.
Palm Court Hotel (Aberdeen)- Sat 28th January 2017 at 1pm.
Radisson Blu Hotel (Edinburgh) – Sat 11th February 2017 at 1pm.

Look out for dates for Inverness & Dundee shortly.

Visit www.vasculitis-scotland.org for more details on support and group dates.

Giving Tuesday 2016 – Ways you can ‘give’ and help LCTF

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#GivingTuesday, a global day of giving, takes place on the Tuesday following Black Friday and Cyber Monday and is a chance to give something back after all that shopping! This year #GivingTuesday is the 29th November.

#GivingTuesday reminds everyone it’s good to give – and encourages people to come together and share the goodwill.

Whether it’s making a donation, volunteering some time or just spreading the word at the start of the Christmas shopping season, #GivingTuesday aims to encourage people, charities and businesses to donate their time, their money or their voice to help a good cause.

Thank You. The Lauren Currie Twilight Foundation is fueled by the hard work and loyalty of our supporters. We are very grateful of proud of every penny and second that is given to us, be it through our events such as The Black & Red Ball, nominating us as a chosen charity, or by sharing our message on social media, Giving Tuesday is also the opportunity to say thank you for this much needed support.

We have summarised some of the ways you can ‘give’ this Giving Tuesday. You can do so in the traditional sense or you can ‘give’ by helping us amplify a Giving Tuesday awareness message.

You can help in the following ways –

 

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Our charity relies on individual donations. Whether it’s a monthly contribution or a simple one off gift, every penny counts.

If you can help in this way, please click the link below

http://www.thelaurencurrietwilightfoundation.org/donate.html

 

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Will you be doing a bit of shopping over the holiday season? If so, please sign up to Easyfundraising to donate for free! When you shop through Easyfundraising, with one of the 3,133 shops and sites, they get a commission for your purchase. EasyFundraising then turns that into a donation that is passed on to us.

If you are signed up, you can also refer friends and family to generate more free donations!

If you can help in this way, please click the link below –

https://www.easyfundraising.org.uk/support-a-good-cause/step-1/?char=36118

 

 

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Will you be sending Christmas cards this year? We have a fantastic offer on Christmas cards at the LCTF Christmas shop.

http://www.thelaurencurrietwilightfoundation.org/christmas-cards.html

 

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You can also help the charity by giving a Facebook post or a Tweet.

One of the charity’s main objectives is to raise awareness, so every retweet and share through social media is a very important.

You can help by posting our special #givingtuesday message

For Facebook –

“I am raising awareness of #vasculitis and supporting The Lauren Currie Twilight Foundation on #givingtuesday”

For Twitter –

“I am raising #awareness of #vasculitis and supporting @LCTFoundation on #givingtuesday

 You could also attach the LCTF/Vasculitis Scotland and #givingTuesday logos when posting. (save the logo above  to your desktop and attach to your message,  or screenshot the logo as a photo and attach if you are on your phone)

 

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You could also help the charity raise awareness by changing your profile picture to The LCTF logo.

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The Lauren Currie Twilight Foundation is a registered charity (SC041934) committed to supporting children and adults diagnosed with Vasculitis throughout the United Kingdom. Our Foundation funds and supports public awareness of the disease, dedicated research projects, patient support services and respite holiday facilities.

 

Your donation will help The Lauren Currie Twilight Foundation in the following areas:

–    To help fund our Research projects dedicated to Vasculitis

–    To help develop and grow our patient support services for people affected by vasculitis, this includes support group, gatherings, online resources, and The Twilight respite Cabin

–    To help us increase vasculitis awareness within the general public and the medical community

Useful links for Benefits advice.

Vasculitis Support Groups – suggestions for 2017

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Support Events – Themes/topics for 2017

The planning for 2017 is already underway at LCTF. One of the main services we provide are the face-to-face support groups around Scotland. We are currently firming up dates and with that in mind we are taking suggestions for potential topics and themes for next year’s meetings. In the past, topics have included Anxiety support, diet and well-being, carers, and patient stories.

Perhaps, you have heard about the benefits of art therapy and want to know more, or you would like a deeper understanding of self-management approaches available, please let us know of anything you think could help you and others affected by vasculitis. We will try our best to find something to match your suggestion in 2017.

If you have a suggestion. please contact us via email at info@thelaurencurrietwilightfoundation.org, via Twitter or Facebook, or in the comment section below.

And the process begins… The Nicest Job in Britain 2017

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A big congratulations to Alice Biggar who has been hired as National Philanthropy Manager at NicestJobs.com, also known as The Nicest Job in Britain 2017.

We mentioned this a few months ago as we were delighted to be chosen as one of the 40 Charity Partners for the project. We observed the recruitment process with great interest as we knew we would be working with the successful applicant. It looked to be an exciting process.

“Our aim with The Nicest Job in Britain is to highlight all the great work that people do up and down the country. Yes, we have created one (nicest) job, but there are many thousands of people (in full time roles and volunteers) who do incredible, inspiring & heart-warming things every single day and we want to showcase them.”    –    Gary Blowers, Creator, The Nicest Job

We are delighted to be involved in NJB 2017, and we look forward to working with Alice in April 2017.

Click here to visit the Nicest Job in Britain blog

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Autumn Update – Vasculitis Scotland launch, The Black & Red Ball 2016

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Late summer/early autumn is usually a busy period at LCTF as all the planning and preparation goes into The Black & Red Ball. This year has been particularly busy as a few other initiatives were launched to coincide with our annual fundraising event.

Over 250 guests supported LCTF at the Radisson Blu in Glasgow for this year’s Black & Red Ball. Classic boyband Five, X- Factor star Nicholas MacDonald and GAMTA provided spectacular entertainment on an evening that raised over £14,000 for the charity. It is great to see so many people return to the B&R year on year as it proves to be a fantastic night out as well as an effective fundraiser and awareness event for a worthy cause. Guests enjoyed a champagne reception before taking their seats for a three-course meal and the night’s entertainment.

Vasculitis Scotland

This year’s Ball had a extra purpose this year, it was the opportunity to launch not just one, but two fantastic initiatives that have been months in the making. Firstly, the new Vasculitis Scotland website went live. www.Vascuitis-Scotland.org is the new platform and identity for the support services arm of The Lauren Currie Twilight Foundation. The new website contains information on vasculitis as well as access to support group news and events.

TV awareness campaign #jointhedots

In addition to the website launch, those at The Black & Red Ball witnessed the premiere of our first TV awareness campaign. Our new advert ran on STVWest, STVGlasgow, STVEdinburgh during the first two weeks of October. Increasing awareness of vasculitis is one the the key objectives of the charity along with providing support services and funding research/education. Each of these three objectives are hugely important and work in harmony with one another. We feel this campaign targets two groups – people unaware of vasculitis and people who may benefit from our support services. TV was an ideal, high profile platform to raise awareness of both vasculitis, and the services our charity provide. The advert also acts as a short awareness video for use online.

Overall, The Black & Red 20116 was a huge success. Many thanks to those who attended, helped out with the planning, those who donated on the night or through the online auction, and those who helped promote the event. This all helps us to do what we do.

Watch the advert here – https://www.facebook.com/thelaurencurrietwilightfoundation/videos/1236187916404522/

Ayrshire Business Week

On October 4th, LCTF attended Ayrshire On Show, Ayrshire Business Week’s networking conference. As you may know, LCTF is registered in Ayrshire so it was great to engage with local businesses in the area. It was very encouraging to hear and see that so many people were aware of the charity (and that people caught the advert on TV!!).  It was a useful days work, with connections made that could lead to projects in the future.

Support Groups

This quarter’s Support Group theme is Carers. We were delighted to be joined by The Carers Trust at the support group in Glasgow. We received some useful information on the support available to carers and some of the issues affecting this area. This information will be put on Vasculitis-Scotland.org soon. We will be joined by local carer organisations at our support groups in Aberdeen (22nd Oct) and Edinburgh (5th Nov).

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Vasculitis Scotland

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www.vasculitis-scotland.org

We are very proud to launch Vasculitis Scotland, the new identity for our Scottish support services arm of The Lauren Currie Twilight Foundation.  The existing LCTF website will continue to offer our patient support services to patients throughout other parts of the UK.

Guests at last week’s The Black & Red Ball were given a sneak peak at the  new awareness campaign that is currently running on STV and STVGlasgow/Edinburgh over the the next 10 days or so.

The new website http://vasculitis-scotland.org/ will run alongside the LCTF website, but will focus more exclusively on the support services the charity provides for patients in Scotland as well as building a valuable patient database.  Please sign up to receive updates on the existing services we provide as well as some new initiatives planned for coming year.  The new Vasculitis Scotland website also provides patient network forums  and live chat for advice and support.

Raising awareness of vasculitis is one of the key mandates of LCTF, along with our support services and research funding. By creating a simple message for our new campaign and using TV we hope to increase the profile of vasculitis and encourage more dialogue around the condition within the general public and in the medical community.

You can sign up To Vasculitis Scotland here

You can also follow @vasculitisscot on Twitter https://twitter.com/vasculitisscot

Five things…

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Five things…

So, it’s less than five weeks until the Black and Red Ball 2016. This year’s headline act is Five. We have encapsulated we do at the charity into five key points. Please take five minutes to read it over.

 

  1. Support Services

LCTF organise patient support groups in Glasgow, Edinburgh and Aberdeen as well and having an online support centre. On our website you will find information on the different types of vasculitis, patient forums, advice on diet, lifestyle and relaxation, as well as a 24hr support phone number.

 

  1. The Twilight Cabin

Since 2013, LCTF has provided funded respite breaks for people affected by vasculitis. Situated near Dalavich in Argyllshire, the Twilight Cabin overlooks Loch Awe provides an authentic log cabin experience which is an ideal base to explore Argyll & Bute and the stunning west coast of Scotland. The cabin is self-catering and can be booked for a weekend or a full week depending on availability.

 

  1. Research

The Lauren Currie Twilight Foundation also funds research. Vasculitis is rare and medical professionals throughout the world are working tirelessly to learn more about the illness, which could lead to quicker diagnosis. Work is also ongoing to improve the effectiveness and efficiency of treatments. LCTF currently fund two projects with the University of Aberdeen – studying the evolution and pathophysiology of autoimmune disease, and a Quality of Life study for people with ANCA-associated vasculitis. We have also contributed to a paediatric drug trial and a diet & nutrition study.

 

  1. Awareness

Raising awareness is hugely important. Vasculitis is rare and can be difficult to diagnose so increasing knowledge and understanding within in the general public and the medical community is crucial. The charity is active on Facebook and Twitter (we blog too)and we organise annual events like the Vasculitis Awareness 5k and our marquee Black & Red Ball. (have you heard? Five are headlining, you should come along). The charity also sponsors educational programmes such the British Society of Rheumatology’s vasculitis webinar series.

 

What is Black & Red

 

  1. Fundraising

The fundraising efforts of our supporters allow us to continue to fund support services and awareness events. So, thank you if you have donated to LCTF at some point. Thank you if you nominated us as your chosen charity. Thanks if you have attended our events and bought tickets. Simply put, we couldn’t do what we do as a charity if it wasn’t for these donations. We are very grateful. The charity is racing towards a milestone of raising £500k and the support of individuals and organisations has been crucial in the last six years.

 

Every little helps, with every social media follower, retweet or mention, awareness and understanding of vasculitis is increased. Please continue to help us amplify our message across the web and through word of mouth because it really makes a difference.

 

So, hopefully these five points have inspired you to help us reach five hundred thousand pounds. Why don’t you sign up for our 5k fun run next year or buy a ticket, or five, for our fifth Black & Red Ball (it’s actually our sixth, but you get the point ), where we have booked Five to perform.

 

Buy tickets for The Black and Red 2016

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