Welcome to the Lauren Currie Twilight Foundation

The Lauren Currie Twilight Foundation was set up in October 2010 in the memory of Lauren Currie who died from Vasculitis and specifically the rare variant, Wegener’s Granulomatosis. Lauren was only 15 and highlighted that Vasculitis can strike at any age, gender or race. Wegener’s Granulomatosis affects 1 in 30,000 people, with 90% of patients at risk if left undiagnosed within two years. Not only is the disease rare, it has no known cause and currently no preventative medication – only treatment to suppress the immune system and obtain a state of remission in some patients.

Research into Vasculitis is ongoing, but due to the rarity of the disease the awareness and research funding is limited. Researchers are dependent on the likes of Lauren’s foundation to partly fund research in the UK. The Lauren Currie Twilight Foundation was set up as a registered charity, founded by Lauren’s parents, and is fully committed and focused on the following objectives:

• To raise and maintain a national awareness of Vasculitis with the general public and general practitioners.
• To fund and produce educational and guidance material on Vasculitis.
• To provide grants to dedicated research projects for Vasculitis.
• To fund and manage LCTF Support Groups for greater patient support and networking.
• Our Year 3 objective is to fund a Vasculitis national helpline, operated by trained Vasculitis nursing staff to advise patients and direct them to dedicated support groups or experienced medical professionals.